Последнее изменение: 05 февраля 2010 г.

Чешская Республика

Česká myelomová skupina, nadační fond

Основные цели фонда CMG:

Поддержка предклинических и клинических исследований в области множественной миеломы
Установление сотрудничества между учеными и клиническими врачами, занятыми в данной области
Совершенствование процесса обмена информацией между пациентами с множественной миеломой и их родственниками

The goals of the Czech Multiple Myeloma Patient Support Group:

to gather the patients with multiple myeloma, their relatives, friends as well as the nurses and physicians participating in myeloma treatments.
to provide information about the disease, the treatment modalities, subsequent care and about other issues the patients encounter.
to create communication means to share information among the myeloma patients, their families and friends.
to raise awareness about the multiple myeloma, a disease that is seen as a rare oncological diagnosis.
to gather information and data about medical care accessibility and about the patients with the disease (provided that they agree to use their data). These data are meant to improve the care of patients suffering from multiple myeloma.
advocacy and participation in negotiation with national institutions, state administration bodies, health insurance companies, corporate bodies and individuals to improve accessibility of efficient treatments and to influence legal or other enactment and procedures in the field of multiple myeloma treatment.