Data da última actualização: 05 de Fevereiro de 2010

República Checa

Česká myelomová skupina, nadační fond

Os objectivos principais da fundação CMG são:

Promover os estudos pré-clínicos e clínicos relacionados com o mieloma múltiplo
Encetar a colaboração entre os investigadores e clínicas que trabalham neste campo
Melhorar a comunicação com os doentes com mieloma e seus familiares

The goals of the Czech Multiple Myeloma Patient Support Group:

to gather the patients with multiple myeloma, their relatives, friends as well as the nurses and physicians participating in myeloma treatments.
to provide information about the disease, the treatment modalities, subsequent care and about other issues the patients encounter.
to create communication means to share information among the myeloma patients, their families and friends.
to raise awareness about the multiple myeloma, a disease that is seen as a rare oncological diagnosis.
to gather information and data about medical care accessibility and about the patients with the disease (provided that they agree to use their data). These data are meant to improve the care of patients suffering from multiple myeloma.
advocacy and participation in negotiation with national institutions, state administration bodies, health insurance companies, corporate bodies and individuals to improve accessibility of efficient treatments and to influence legal or other enactment and procedures in the field of multiple myeloma treatment.