Ultimo aggiornamento: 05 febbraio 2010

Repubblica Ceca

Česká myelomová skupina, nadační fond

I principali obbiettivi della fondazione CMG sono:

sostenere la ricerca ospedaliera e preospedaliera in relazione al mieloma multiplo
instaurare un clima di collaborazione tra i ricercatori e il personale ospedaliero che lavora in questo campo
favorire e migliorare la comunicazione con i pazienti affetti da mieloma multiplo e i loro famigliari

The goals of the Czech Multiple Myeloma Patient Support Group:

to gather the patients with multiple myeloma, their relatives, friends as well as the nurses and physicians participating in myeloma treatments.
to provide information about the disease, the treatment modalities, subsequent care and about other issues the patients encounter.
to create communication means to share information among the myeloma patients, their families and friends.
to raise awareness about the multiple myeloma, a disease that is seen as a rare oncological diagnosis.
to gather information and data about medical care accessibility and about the patients with the disease (provided that they agree to use their data). These data are meant to improve the care of patients suffering from multiple myeloma.
advocacy and participation in negotiation with national institutions, state administration bodies, health insurance companies, corporate bodies and individuals to improve accessibility of efficient treatments and to influence legal or other enactment and procedures in the field of multiple myeloma treatment.