Τελευταία τροποποίηση: 05 Φεβρουαρίου 2010

Δημοκρατία της Τσεχίας

Česká myelomová skupina, nadační fond

Κύριοι στόχοι της CMG είναι:

Η υποστήριξη της προ-κλινικής και κλινικής έρευνας στον τομέα του πολλαπλού μυελώματος
Η καθιέρωση συνεργασιών μεταξύ ερευνητών και γιατρών που εργάζονται σε αυτό τον τομέα
Η βελτίωση της επικοινωνίας με τους ασθενείς με πολλαπλό μυέλωμα και τους συγγενείς τους

The goals of the Czech Multiple Myeloma Patient Support Group:

to gather the patients with multiple myeloma, their relatives, friends as well as the nurses and physicians participating in myeloma treatments.
to provide information about the disease, the treatment modalities, subsequent care and about other issues the patients encounter.
to create communication means to share information among the myeloma patients, their families and friends.
to raise awareness about the multiple myeloma, a disease that is seen as a rare oncological diagnosis.
to gather information and data about medical care accessibility and about the patients with the disease (provided that they agree to use their data). These data are meant to improve the care of patients suffering from multiple myeloma.
advocacy and participation in negotiation with national institutions, state administration bodies, health insurance companies, corporate bodies and individuals to improve accessibility of efficient treatments and to influence legal or other enactment and procedures in the field of multiple myeloma treatment.