Myeloma Euronet

European Network of Myeloma Patient Groups

Press Archive

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The information in the press releases on this page was factually accurate on the date of publication. Myeloma Euronet assumes no duty to update the information given in the press releases to reflect subsequent developments. Readers should not rely upon the information given in the press releases on this page as current or accurate after their publication dates.

Press releases issued by Myeloma Euronet member organizations can be found on their websites.

Myeloma Euronet News

23 April 2008: Myeloma Euronet welcomes European approval of Thalidomide Pharmion

Myeloma Euronet welcomes the decision of the European Commission to grant a marketing authorisation for Thalidomide Pharmion® in combination with Melphalan and Prednisolone as initial treatment for myeloma patients aged 65 or older and not suitable for high-dose chemotherapy and stem cell transplantation.

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4 February 2008: Myeloma Euronet participates in the EC Public Consultation "Rare Diseases: Europe’s Challenges"

Myeloma Euronet welcomes the initiative of the European Commission to make rare diseases a priority within the EU’s future public health policy and has answered to the questions raised in the recent European Commission Communication on Rare Diseases.

27 February 2007: Late diagnosis and slow drug approval are the greatest barriers to multiple myeloma treatment and care

26 October 2006: Joint statement on NICE’s final ruling on Velcade

Joint statement from Myeloma UK and other leading UK cancer charities in response to the decision of the National Institute for Health and Clinical Excellence to reject vital treatment for multiple myeloma

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30 September 2006: Multiple Myeloma Manifesto

Silent No More: A Call to Action on Behalf of People Living with Multiple Myeloma

30 September 2006: Myeloma Euronet Web site www.myeloma-euronet.org now available in Turkish language

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17 June 2006: Myeloma Euronet Treatment Update and Panel Discussion in Amsterdam

Myeloma Euronet empowers patients and highlights inequalities in access to treatment and care for myeloma patients in Europe

23 May 2006: International survey – Your opinion counts!

Myeloma Euronet launches international survey on barriers to myeloma diagnosis, treatment, and care

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Join us in Amsterdam on 17th June 2006:

Myeloma Euronet Treatment Update and International Panel Discussion on Access to Treatment and Care for Myeloma Patients in Europe

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3 June 2005: Launch of Myeloma Euronet

First Ever European Network of Myeloma Patient Groups Launched at the 10th Congress of the European Hematology Association (EHA) in Stockholm.

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News from other organizations

30 January 2006, ECPC (European Cancer Patient Coalition)

"Warsaw Declaration" will save lives say leading cancer patient groups

Read full press release: PDF* (37 KB)

Download "Warsaw Declaration":

The "Warsaw Declaration" can be signed by all interested parties on the ECPC website www.ecpc-online.org.

November 2005, EURORDIS (European Organisation for Rare Diseases)

"Rare Diseases: understanding this Public Health Priority"

Read full text: PDF* (172 KB)

20 October 2005, ECPC (European Cancer Patient Coalition)

ECPC calls for an end to cancer inequalities across the European Union

Read full press release: PDF* (131 KB)

9 December 2004, ECPC (European Cancer Patient Coalition)

ECPC response to Commissioner Byrne

ECPC response to Commissioner Byrne's reflection process for a new EU Health Strategy "Enabling good Health for all".

Read full press release: PDF* (96 KB)

20 July 2004, ECPC (European Cancer Patient Coalition)

ECPC response to EMEA proposals

European Medicines Agency (EMEA)-ECPC's response to EMEA's proposal to involve cancer patients with cancer drug regulations in Europe.

Read full press release: PDF* (101 KB)

8 June 2004, EURORDIS (European Organisation for Rare Diseases)

Press release

Thalidomide: patients denounce the withdrawal of the marketing authorisation application for multiple myeloma treatment.

Read full press release: PDF* (66 KB)

 



 
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