Website Policy

General policy

The Myeloma Euronet subscribes to the HON Code of Conduct (HONcode) for medical and health websites of the Health On the Net Foundation:

1. Authority
   Any medical or health advice provided and hosted on this site will only be given by medically trained and qualified professionals unless a clear statement is made that a piece of advice offered is from a non-medically qualified individual or organisation.
2. Complementarity
   The information provided on this site is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her existing physician.
3. Confidentiality
   Confidentiality of data relating to individual patients and visitors to a medical/health Web site, including their identity, is respected by this Web site. The Web site owners undertake to honour or exceed the legal requirements of medical/health information privacy that apply in the country and state where the Web site and mirror sites are located.
4. Attribution
   Where appropriate, information contained on this site will be supported by clear references to source data and, where possible, have specific HTML links to that data. The date when a clinical page was last modified will be clearly displayed (e.g. at the bottom of the page).
5. Justifiability
   Any claims relating to the benefits/performance of a specific treatment, commercial product or service will be supported by appropriate, balanced evidence in the manner outlined above in Principle 4.
6. Transparency of authorship
   The designers of this Web site will seek to provide information in the clearest possible manner and provide contact addresses for visitors that seek further information or support. The Webmaster will display his/her E-mail address clearly throughout the Web site.
7. Transparency of sponsorship
   Support for this Web site will be clearly identified, including the identities of commercial and non-commercial organisations that have contributed funding, services or material for the site.
8. Honesty in advertising & editorial policy
   If advertising is a source of funding it will be clearly stated. A brief description of the advertising policy adopted by the Web site owners will be displayed on the site. Advertising and other promotional material will be presented to viewers in a manner and context that facilitates differentiation between it and the original material created by the institution operating the site.
   

Privacy / Data Protection Notice

We are pleased to have received your visit to our website and thank you for your interest in our organisation and the information we have provided.  The protection of person-related data when recording, processing and using this data on the occasion of your visit to our website is of the utmost concern to us.  In the following, we explain which information we record during your visit to our website and how said information is used.

The automatic recording of non-person-related data

Every time access is made to a page on the Myeloma Euronet website and every time a file is viewed, so-called log files are stored recording these occurrences.  The data thus stored serves exclusively for statistical purposes pertaining to the internal system.  In detail, the following data-set is stored on every access to the site:

• Name of the file accessed
• Date and time of accessing
• Volume of data accessed
• Report as to whether the access was successful
• Type of web browser and operating system used
• the accessing domain and referrer (URL of the page from which you made connection with our website)
• IP address.

These data could possibly be used for identification but, in fact, no use is made of any person-related data.  This enables the data to be evaluated for statistical purposes, whereby the anonymity of the user, however, remains guaranteed.

Person-related data

Person-related data, such as your name, address or telephone number, are only recorded if you volunteer this information to us when sending us an e-mail, filling in forms, answering a questionnaire, or responding to a request for information or material, etc.

For technical reasons and for the further development of means for combating spam, all information that you voluntarily transmit to us by completing forms (e.g. when requesting information regarding events, when filling out the feedback form, etc.) is recorded.  In the case of a misuse of our offer, attacks or publications with illegal content matter, the data transmitted is passed on by order of the court.

Should you wish to receive regular information about Myeloma Euronet through our press release mailing list, we need from you a valid e-mail address as well as information which enables us to ascertain that you are the owner of said e-mail address and/or that the owner of the e-mail address is in agreement with receiving such information.  At any time, you are entitled to withdraw your consent to the recording of your e-mail address or the use of same for the purpose of sending information.

Information transmitted to us via answer forms or e-mails, respectively, is additionally stored on a local PC (in order to enable us to document the communication and response more promptly to questions, etc.). On written request, we erase also this information / these e-mails immediately.  

Your person-related data is neither sold nor passed on to third parties without your prior consent.

Person-related data is erased

• if you so request this in writing,
• if it is no longer necessary to store such data for the intended purpose or
• the storage of said data is otherwise impermissible for legal reasons.

The right to view information stored

On written request, we are pleased to supply you with information as to which data we have stored relating to you personally.

Java-Script

In presenting this internet offer, Java Script is used. In the event that you do not wish to make use of this tool and/or its active content, we recommend that you deactivate the pertinent settings of your browser.

Cookies

On some of the pages of our website, co-called Cookies are used. Cookies are text files that can be sent to your computer by a web server so that the computer can be identified during your visit.  The default settings of most browsers automatically accept cookies. However you can set your browser so that it will inform you when cookies are sent or you can deactivate the storing of cookies. 
If you leave our site via a link to another site, it may happen that cookies are also sent by the addressee of the selected site.  We are not legally responsible for these cookies.  For information on the use of such cookies and the information stored thereon by the providers of other sites, please refer to their respective declarations regarding data protection.

Security Notice

By applying all necessary technical and organisational security measures we endeavour to store your person-related data in such a manner that they are accessible neither to third parties nor to the general public.  Should you wish to contact us via e-mail, we draw your attention to the fact that the confidentiality of information transmitted by this mode of communication cannot be fully guaranteed. Hence we recommend you to send us confidential information exclusively by post.

Miscellaneous

If you send us questions that are similar to other questions that we have already received, we may decide to use such information to improve our website and to add the questions, in anonymous, form under “Frequently Asked Questions”.  
The originator of all and any information communicated on this website or the owner of same is responsible for the truthfulness and correctness of said information.

How to Contact Us

Write to the following address, also if you have other questions relating to the processing of your personal data:

Myeloma Euronet
c/o Robert Schäfer
Brunnenstrasse 178/179
D-10119 Berlin
Deutschland / Germany

Advertising

No advertising is accepted on the Myeloma Euronet website.