European Network of Myeloma Patient Groups

Last modified: 05 February 2010

Czech Republic

Ceská myelomová skupina, nadacní fond

Česká myelomová skupina, nadační fond

The main goals of the CMG Foundation are:

  • To support preclinical and clinical research in the field of multiple myeloma
  • To establish collaboration among researchers and clinicians working in the field
  • To improve communication with patients with multiple myeloma and their relatives
Mnohocetný Myelom Klub Pacientu

Mnohočetný Myelom Klub Pacientů

The goals of the Czech Multiple Myeloma Patient Support Group:

  • to gather the patients with multiple myeloma, their relatives, friends as well as the nurses and physicians participating in myeloma treatments.
  • to provide information about the disease, the treatment modalities, subsequent care and about other issues the patients encounter.
  • to create communication means to share information among the myeloma patients, their families and friends.
  • to raise awareness about the multiple myeloma, a disease that is seen as a rare oncological diagnosis.
  • to gather information and data about medical care accessibility and about the patients with the disease (provided that they agree to use their data). These data are meant to improve the care of patients suffering from multiple myeloma.
  • advocacy and participation in negotiation with national institutions, state administration bodies, health insurance companies, corporate bodies and individuals to improve accessibility of efficient treatments and to influence legal or other enactment and procedures in the field of multiple myeloma treatment.